When I Walk

When I Walk

Downloadable Video - 2015
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I love New York. When I was younger, the city was my playground. You could find me on any given weekend catching brunch with a friend at a caf,̌ going to an East Village restaurant for dinner, and then hopping the subway, headed to a nightclub in Chelsea. But at age 25, nine years ago, I was told I had multiple sclerosis, and I saw my freedoms slowly vanish. All of a sudden, I found myself using a walker-now, a motorized chair-and planning daily activities with precise schedules and strategies for getting from one place to another, trying to maintain some semblance of the spontaneous city life I loved to live. I wanted to capture this transformative experience-becoming disabled-in WHEN I WALK because I hadn't seen it done before, and people need to see how a degenerative disease impacts the lives of those living with it. The first scene in the film is of me on the beach with my family. I brought my camera along to film the get-together, but the footage we captured meant more than I could have imagined: I fell down, and couldn't get back up. It was the very first time my MS made something in my life go completely awry, made itself visible and impossible to ignore. What was supposed to be a nice family vacation turned into the inciting incident. Soon after, and encouraged by my family, I chose to not ignore my MS but to turn my camera on it instead. I had made films all my life, so making a film about the progression of the disease seemed a natural way for me to process the journey.
Publisher: [United States]: AXS Lab , 2015.
Branch Call Number: eVideo hoopla
Characteristics: 1 online resource (1 video file (approximately 85 min.)) :,sd., col.
digital, rda
video file, rda

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Annemarie_F Nov 02, 2014

Jason DaSilva is amazingly courageous documenting his condition and life.

s
SAPL454
May 17, 2014

One of the most beautiful love stories I have seen based on true events about a spouse with MS. They do come any better than this!

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